Frequently Asked Questions
What is Inner Heart Glow?
Inner Heart Glow is a space for the congenital heart disease community centered on the whole person behind the diagnosis. I created it to share my lived experience with CHD, what I've learned along the way, and the practices and perspectives that have helped me care for myself and live fully. It's a place for honest conversations, education, advocacy, connection, and whole person wellness.Who is Inner Heart Glow for?
Inner Heart Glow is primarily for people living with congenital heart disease, but parents, families, caregivers, and anyone connected to the CHD community are welcome here. My hope is that whether you're navigating CHD yourself or loving someone who is, you'll find something here that helps you feel a little more informed, supported, hopeful, or understood.Do you have congenital heart disease?
Yes. I was born with complex congenital heart disease and have undergone multiple heart surgeries, including the Fontan procedure. I've been fortunate to live a full and active life with CHD, and my experiences growing up and now navigating adult congenital heart care are at the heart of why I created Inner Heart Glow. You can read more about my journey on my CHD Story page.Are you a medical professional?
No. I'm a patient sharing my own lived experience. What I share through Inner Heart Glow is based on my personal experiences, research, conversations with my care teams, and what I've learned through years of navigating CHD. Nothing here is intended to replace medical advice or care from your own healthcare team.Can I share my story or connect with you?
Absolutely. One of the reasons I created Inner Heart Glow is because I believe there is so much power in connecting with people who truly understand. Whether you live with CHD, love someone who does, or simply want to share your experience, I'd love to hear from you. You can reach out through my contact page or connect with Inner Heart Glow on Instagram.What do you mean by whole person wellness?
Living with CHD has taught me that caring for my health goes far beyond my heart. To me, whole person wellness means paying attention to the physical, mental, and emotional parts of our well being and recognizing how deeply connected they can be.
It's also about focusing on what we can control. We can't control every diagnosis, test result, or challenge that comes our way, but we can make intentional choices about how we care for ourselves, advocate for our needs, and approach the life we're living.Are you available for speaking, podcasts, or collaborations?
Yes! I'm always open to meaningful opportunities to connect, share my lived experience, and advocate for the CHD community. This can include podcasts, patient panels, speaking engagements, educational events, wellness initiatives, and collaborations that align with the mission of Inner Heart Glow. Please reach out through my contact page if you'd like to connect.Why is it called Inner Heart Glow?
Each part of the name represents something at the core of what I hope to create here. Inner is the whole person behind the diagnosis and caring for the parts of ourselves that aren't always visible. Heart is CHD, the center of my story and the community this space was created for. Glow is about living fully alongside CHD and finding hope, connection, growth, and meaning through whatever life brings. Together, Inner Heart Glow represents caring for the whole person, honoring the heart that has shaped us, and creating a meaningful life alongside CHD.